Director of Marketing and Communications

DIRECTOR OF MARKETING & COMMUNICATIONS Full-time | Remote, with New York State residency preferred | Salary $75,000 plus $5,000 annual health insurance allowance Help change lives and make the world take notice The Vascular Birthmarks Foundation (VBF) seeks a creative, resourceful, results-oriented Director of Marketing & Communications to amplify our international mission and turn awareness into action. This is an opportunity to shape the voice and visibility of a patient-centered organization whose work connects families to expert care, advances education and research, and empowers people living with vascular birthmarks, anomalies, and/or related syndromes (VBARS). The opportunity This is a hands-on leadership position for a strategic thinker who is also an exceptional doer. Working closely with VBF’s leadership and collaborating with staff, contractors, physicians, volunteers, board members, and external partners, the Director will develop and execute an integrated marketing and communications plan that builds public recognition, deepens engagement, and strengthens donor and sponsor development. The successful candidate can set priorities, create compelling content, manage campaigns and partners, and show measurable progress. Key responsibilities Brand strategy, storytelling, and communications Develop and execute an annual marketing and communications strategy with clear goals, audiences, timelines, budgets, and performance measures Protect and elevate VBF’s brand, voice, and reputation across its website, social platforms, email, publications, presentations, and events Translate complex medical and research topics into accurate, accessible, compassionate messages, with appropriate expert review Identify and tell powerful patient, family, physician, and volunteer stories Produce or direct high-quality copy for newsletters, appeals, web pages, videos, educational campaigns, and executive communications Digital marketing and community engagement Lead an integrated content calendar, with social media presence, email marketing, website content, search visibility, and appropriate paid campaigns Grow meaningful engagement among patients, families, medical professionals, supporters, and prospective partners across the United States and internationally Oversee content production and coordinate designers, contractors, vendors, and relevant staff or volunteers Monitor performance through monthly reporting on reach, engagement, email growth, website actions, campaign conversions, and cost effectiveness Establish thoughtful protocols for community inquiries, sensitive comments, misinformation, and escalation of medical questions to qualified professionals Media relations and public awareness Build relationships with local, national, and international journalists, health reporters, publications, and appropriate influencers Write and distribute press releases, pitch meaningful stories, coordinate interviews, and prepare VBF leadership and experts for media opportunities Position VBF as a trusted source on VBARS and promote public education, early recognition, and access to appropriate specialty care Fundraising and partnership communications Partner with leadership on donor acquisition, retention, stewardship, annual giving, campaigns, and major-gift communications Create persuasive sponsor proposals, impact reports, appeals, recognition materials, and tailored updates that demonstrate the results of philanthropic support Help identify and cultivate corporate sponsors, foundations, and strategic partners; coordinate with leadership on relationship management and fundraising priorities Support fundraising events and campaigns with compelling messaging, promotion, sponsor visibility, and post-event follow-through Event and program promotion Lead communications and promotional planning for VBF’s virtual and in-person events and initiatives Coordinate patient-facing information, registration promotion, sponsor recognition, media outreach, and post-event impact storytelling with operational leaders Develop campaigns that connect families with existing VBF services and highlight the value of free specialty care, research, and advocacy What success looks like In the first 90 days, learn VBF’s mission and audiences, audit existing channels and assets, establish baseline metrics, and present a prioritized 12-month plan. During the first year, deliver consistent campaigns, stronger donor and sponsor materials, increased qualified engagement and media visibility, and clear monthly results reporting. Specific targets will be agreed upon with leadership based on baseline data and available resources. Qualifications At least five years of progressively responsible experience in marketing, communications, public relations, or a closely related field; nonprofit, healthcare, patient advocacy, or mission-driven experience strongly preferred Demonstrated success developing strategies and personally executing campaigns across digital, email, media, and content channels Outstanding writing, editing, interviewing, storytelling, and interpersonal skills; able to adapt messaging for diverse audiences Experience supporting fundraising, donor stewardship, sponsorship, or cause-related campaigns Working proficiency with analytics, email marketing platforms, website content management, social media management and integration, and CRM systems; ability to learn new tools quickly Strong project management, sound judgment, attention to detail, and ability to work independently in a small, collaborative organization Comfort collaborating with medical experts while recognizing that clinical guidance and claims require appropriate review Working arrangements Full-time remote position. New York State residents are strongly preferred. Some scheduling flexibility is needed for events, occasional evenings or weekends, and coordination with international partners. Travel to selected VBF events is expected; arrangements and reimbursement will be discussed. How to apply Please submit résumé and cover letter explaining why VBF’s mission matters to you as well as a brief description of your measurable results. If contacted for an interview, be prepared to present two or three relevant work samples (such as a campaign, fundraising appeal, media pitch, or communications portfolio). VBF is committed to fair, inclusive hiring and welcomes qualified applicants from varied backgrounds. We value lived experience, empathy, initiative, and demonstrated ability to advance our mission. About VBF The Vascular Birthmarks Foundation (VBF) is the leading international charitable organization that helps those born with vascular birthmarks, anomalies, and/or related syndromes (VBARS). For over 30 years, we have operated as an international organization that networks those affected to the appropriate medical professionals for evaluation and treatment. VBF also educates physicians and affected families regarding treatment options, supports relevant research, mobilizes medical missions, and empowers those living with vascular birthmarks.